Ashley Cain and his girlfriend Safiyya Vorajee have hailed their “hero” daughter after moving her home from hospital to spend her last few days as comfortable as possible.
Little Azaylia, who turned eight months old this week, has spent most of her young life in and out of hospital battling a rare form of leukaemia.
While she’s made some progress, the disease recently came back aggressively, and yesterday the family were given the devastating news that there is no more treatment available.
Ashley and Safiyya have taken the decision to move Azaylia back home so she can be surrounded by their love and finally be treated “as a normal baby” before she slips away.
After emotional Ashley’s 10-minute update to fans yesterday, Safiyya shared a poignant clip of herself cuddling Azaylia on her Story.
“My hero,” she captioned the Boomerang, which showed a sleepy-looking Azaylia cradled in the crook of her mum’s arm as she quietly sucked her dummy.
A tube could be seen running into her nose to deliver oxygen, but Azaylia had been taken off her other machines to have a cuddle with her mum.
Ashley has documented Azyalia’s eight-month fight and the parents were given a spark of hope recently when consultants in Singapore offered an experimental treatment if they could get Azaylia over there.
Fans donated more than £1million to Ashley and Safiyya’s fundraising page, but sadly the treatment option has now been withdrawn because Azaylia’s form of leukaemia is too rare – she’s the only person in the world with it.
Now new scans have found tumours in the baby’s lungs, stomach, spleen and two on her brain, which means she’s unble to have more chemo.
“So last week we had the bone marrow test and the lumbar puncture and bloods taken to send to Singapore in the hope that they could create therapy to save Azaylia’s life,” Ashley told his followers on Thursday.
“Then we had to have a CT scan on her head and the results came back the next day to say she’s got two very big tumours on her brain.
“They also said that the chemotherapy that is usually given to treat leukaemia in the spine or the brain will not be available because she has too much pressure with these tumours.”
He choked up as he explained: “If they tried to go through the spinal tap it would kill her. At that point, our world came down.
“Consultants said that they think she’s only got one, two days to live, it could even be that night.”
Despite first wanting to “fight” for more treatment, Ashley has changed his mind and says it’s more important for Azaylia to be comfortable for her final days.
“For the last part of her life I just want to take her home. See her like a baby and give her the best rest of her life ever,” he added.
“She needs to see her daddy smiling.”
If you’ve been affected by this story, Bliss provides support for parents and families of babies born premature or sick.